If you’ve kept up with our family’s experiences with PFAPA, you’ll remember BB#2 had a tonsillectomy and adenoidectomy back in October 2013. Knock wood (because I’m still paranoid enough to do that whenever I say this), he hasn’t had any mystery fevers since! Yes, he’s gotten sick, but it’s been with coughs and colds, like other kids. We know there’s no guarantee that the fevers won’t recur (he still occasionally gets the mouth sores, so I know it’s not completely “cured”), but for now, we’re just grateful for this long break–for him, for our family.
Which is why we finally got around to having BB#1’s tonsils out this past week. I know, it seems odd that our younger child had surgery first, but because this syndrome was never as disruptive for our oldest, and because he was older when we figured it all out, we held out hope he’d grow out of it without surgery. But he’s 11 now, and still getting the fevers, about once a month. We did try prednisone with him and it did stop the symptoms, but like we experienced with his brother, the fevers seemed to come closer together–the last time we used it, he was sick again less than two weeks later. He was getting tired of getting sick, even if it was only for 24-72 hours at a time. And we didn’t want him heading into junior high missing school once a month. We all agreed tonsillectomy was our only option at this point.
So far he’s recovering well, eating lots of soft cold things, playing lots of video games. We have our fingers crossed that this is the end of it. Though I’m still pondering my bloggy future, I know people land here in their search for information on this syndrome, so I thought I’d share what I hope is our final chapter.
Looking for more information on our experiences with PFAPA? Start here.